Current Parkinson’s Families Projects

There are opportunities for you to participate in several genetic studies now; some looking for new genes, some exploring genes we already know affect people with Parkinson’s and some new drug trials specifically targeting certain genetic pathways.

PFP main study

The Parkinson’s Families Project (PFP) is our main Parkinson’s study. It is a UK-wide study looking at finding new Parkinson’s genes so that we can better understand the causes of the disease and ultimately develop new treatments.

Learn more about a study site near to you

Get in touch

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100,000 Genomes project

The project will sequence 100,000 genomes from around 70,000 people. Participants are NHS patients with a rare disease, plus their families, and patients with cancer. This national study includes patients with multiple conditions including Parkinson’s.

If you would like to hear more about getting involved please contact Dr Daniela Iancu daniela.iancu@nhs.net

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VIP

Parkinson’s affects people in different ways. Dr Rimona Weil is coordinating a study looking at how people with Parkinson’s are affected differently, using clues from how they interpret visual images. The aim of the study is to work out whether vision can give us insight into these differences. Ultimately, we want to use these clues to target new treatments to the right people.

If you would like to hear more about getting involved please contact Dr Rimona Weil r.weil@ucl.ac.uk

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LRRK2

The commonest gene change which causes familial Parkinson’s is in the LRRK2 gene. We are looking at how certain changes in proteins related to this gene can be picked up earlier with a view to being able to predict the condition and developing new drugs that could be useful in the treatment of Parkinson’s.

If you would like to hear more about getting involved please contact Maya Bronfeld m.bronfeld@ucl.ac.uk

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